Bryson's Blog

Living with Trisomy 13

Monday, June 26, 2006

Living with Trisomy 13


My previous post dealt with the clinicians and doctors take on Trisomy 13 or Patau's Syndrome. This link http://www.livingwithtrisomy13.org/index.htm (click on Photo Albums) deals with families that offer help, hope and remembrance of their own Trisomy Angels. Bryson has his own page. I have spent a lot of time at this website, learning all I can about what it's like to care for a Trisomy 13 diagnosed child. It appears that if you are a persistant, informed parent advocating for the best care possible and not accepting of the original thought that Trisomy 13 is not compatible with sustaining life, your child can get past the hurdles that life has given them.

1 Comments:

Anonymous Randie said...

Hi Tia! Thank you so much for putting up this page. Bryson is so blessed to have such a fantastic Grandma! I'm glad to see new pictures of baby Bean. He is SO cute!! I'm looking forward to all the updates and grandmatronly wisdom you'll have to share. Love you!

9:11 PM  

Post a Comment

Links to this post:

Create a Link

<< Home