Bryson's Blog

Living with Trisomy 13

Sunday, August 16, 2009

Sad News

Hello all... I know owe an apology for not keeping those of you who are dear to us and Bryson updated. things usually go very well day to day..... until this last Friday when Bryson's heart stopped. It was a full cardiac arrest and we where unaware that he had stopped breathing as we had only just put him to sleep. He aspirated the juice we had given him last and may have been without a breath or heart beat for several minutes before Travis had found him.

And this is a Testament to the kind of man and medic my husband is, he worked on him to revive him for 6 to 7 minutes and I called 911. Shortly after they arrived, the EMT's gave BEAN a epi pen and a faint heart beat was heard. Today he is in stable condition at the hospital here called Madigan ARmy medical center. It's still very scary as we don't know how long he was dead for until his breath came back to him. He is breathing on his own with assistance from a ventilator and is under heavy sedation so not to be irritated with the tube down his throat. We are certainly not out of the woods. Bryson may never be the same, and if there is swelling in his brain from lack of oxygen, tonight will tell which way the tide will turn for him. But as those many of you who know our BEAN, he is a valiant fighter and strong at heart and still very young enough to recuperate from such a traumatic event. We are camped out at the hospital for a while and will know more in the coming days after mri and eeg results will tell some about the condition of his brain. And then following that to see how he tolerates breathing with less assistance from the vent and hopefully decreasing his sedatives so we may see our boy shine through.
But that is the hopeful side and that's all that I want to share so that if you are the praying kind to know what to ask GOD for. I wont go into the details to break any hearts tonight, but I will do my best to keep posting as things change so that as time goes on that we may be in your thoughts and prayers. Tonight he is resting peacefully and is an angel to behold. My little cherub is so precious!!!! I kiss him so much now that he's not wiggling so much so that each of you who wish your kisses, that prescription is being filled always. We are staying steady by his side so emails or phone calls may be missed for a while so please be patient with us as we concintrate diligently on our boy. I would appriciate your thoughts here on this page so the are saved with the words of this blog dedicated to the most charming sweety boy I've ever known. Thank you.

4 Comments:

Blogger Amanda said...

Our thoughts and prayers go out with you guys... love the Bean. Hope he gets better soon. Give Travis, Dana, and sweet baby boy or love.

11:43 AM  
Blogger Carol said...

I'm praying for Bryson with everything that's in me. Aunt Carol

8:01 PM  
Blogger Lynne said...

i love you bean and always will get better for me and i hope to come visit u soon. i love you i love you i love you. more then i can say.

8:43 AM  
Anonymous cmitchum said...

Bryson, your Gramma took a big pile of love, kisses, prayers and tears with her on the plane from Charleston.

8:26 PM  

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