Bryson's Blog

Living with Trisomy 13

Wednesday, August 29, 2007

What's going on?


It's been a while since I've posted to this blog, and I apologize to those who want to stay informed about Bryson. In a nutshell, he's been doing well. He is on the verge of crawling.

Soon they will be consulting with the ENT that did the surgery for the tubes in his ears. He, along with a Cleft Team will be there to perform the surgery to repair Bryson's cleft lip. (the palate will come later) For more information on Cleft Lip and Palate repair visit:

http://www.plasticsurgery.org/patients_consumers/procedures/CleftLipPalate.cfm

Bryson had an Opthalmology appointment this week and they will perform an ultrsound on his eyes while under anesthesia for the cleft lip surgery to see if the cataract on one of his eyes can be removed to improve his vision. Pediatric cataract surgery differs from adult surgery which can be done outpatient and visual accuity improves dramatically. With Bryson's cataract being congenital, (meaning at birth) along with Micropthalmia,finding the proper solution to cataract removal and possible IOL (Intraocular Lens) implant or other may improve his chances to have some seeing capability.

I am planning to fly to San Antonio when Bryson has the surgery so I can be there to help where needed and to see baby's new "makeover". Folks this is as real as a reality show can get. But you don't see the networks clammering to see what the Naults live everyday. As always, please keep them in your thoughts and prayers as none of this is easy.

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