Bryson's Blog

Living with Trisomy 13

Sunday, August 06, 2006

Cardiology Appointment

On Friday, August 4th, Bryson had an appointment in with a Cardiologist. The Cardiologist thought that Bryson's heart was strong considering the Trisomy 13 diagnosis. All this time, we were told that he had 2 holes in his heart, ASD and VSD (Atrial Septal and Ventricular Septal Defects), which a lot of Trisomy 13 children do have. But remember, Trisomy 13 is not a cookie cutter diagnosis.

What was found was that he has a heart valve that was abnormal. Normally a heart valve has three flaps called "leaflets". Bryson has two flaps instead of three. Your heart valves keep blood flowing in one direction through your heart, just like the one-way valves in your home's plumbing. They open to let blood flow through, and then close to prevent blood from flowing back the way it came. When a valve closes, flaps of tissue on the valve close tightly together to create a seal. This is better news because it was thought that if he had both ASD and VSD, the possibility of him being able to withstand surgery outside of an emergency, was not even to be considered.

As he continues to grow and change, with every appointment, we learn more and more about this little fellow. He really continues to amaze us.

3 Comments:

Anonymous Amanda said...

I am so glad everything is going great! The prayers are working from everyone!!! Bryson and my little guy look just like each other. You can tell their cousins! Its so cute that you can see each other in them!!! Well hope all the blessings stay! Love you Bryson, aunt Amanda grandma Tam Uncle Conrad and Uncle David and baby David!! Hugs and kisses!!!

10:20 PM  
Blogger Dori said...

Amanda...

Congratulations Amanda & David on the birth of your new baby boy David Lee, Jr.

I hope you come back to find this post. I lost your e-mail address.


Please e-mail me some pix of your baby David, Jr. I would really love to see him.

6:05 PM  
Anonymous Daniel Coy said...

Thank you for all your efforts in maintaining a record both writen and photographic of this miraculous child. We prey for him and Dana and Travis daily.
Best Wishes
Grand Pop Coy

5:40 PM  

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