Bryson's Blog

Living with Trisomy 13

Monday, February 26, 2007

Surprise, Surprise!!! Mom actually has a moment to make a post on the blog!!! So let me just begin by saying my mom, Gramma Dori gives such wonderful effort to build up this blog and keep everyone pretty well informed, but i'm really hoping to put forth more effort on our parts to give y'all a first hand account of whats goin on.
Well, the Nault's know a thing or two about getting while the gettin is good, and boy are we pretty glad we evacuated northern New York just in time. We really needed to start out on a good foot since last year was so hard on us. But reflecting back, it's very simply amazing how well we stood up to all the hard knocks we got. Time after time, we got back on our feet and kept moving on. We are now in a place that is so promising and bright that we can finally enjoy looking forward to the future. Our BEAN is nearly 9 months old, is making such great gains developmentally, and has become the source of familial happiness. We've got a great team of specialist doctors and therapists who are all impressed with his progress and are also anxious to watch him flourish and grow. You know, he just doesnt know he's got issues, he demands to be challenged like a growing smart little boy. He's so strong willed like us and does the best that he knows how. BEAN is certainly the inspiration for beating the odds and living life without regret. For now, it all feels like a normal life. Travis and I are so gratefull that Bryson chose us to be his parents, because of him we love each other more deeply and appreciate the quality of our own existance. I wish that for anyone who comes into our lives to take that message to heart and experience that fulfillment for themselves.

Sunday, February 11, 2007

Look at me now!



Hope you enjoy this latest photo montage. Bryson is now 8 months old.

Saturday, February 10, 2007

Again, Scary times

Yesterday, Bryson had a very bad apnea episode. What usually happens is that it starts with crying. He'll get very upset, to the point of being inconsolable, then he gets this painful expression on his face and stops breathing. Sometimes all it takes to get him breathing again is a little stimulation, such as stroke on his feet, talking to him, puffing some air in his face, but yesterday, nothing was working. Finally after what must have felt like an eternity, he took a big breath and started crying only to pass out of consciousness. He didn't come back to consciousness for a while either. This was very scary for Dana and she was very upset.

No one other than a Trisomy family can understand that these episodes, short or long in length can frighten even the most bravest of souls. It shakes you to your core. You never know if this is the moment that your baby is going to leave you or if, with God's will that this precious little one is allowed to stay. I pray every day that God will give us many good days, that I will be able to see my Grandson again. I miss him so much.

We want him to grow, develop and be happy. I thank God for every day He gives us. Please keep Bryson, Dana & Travis in your prayers.