Bryson's Blog

Living with Trisomy 13

Wednesday, September 26, 2007

More pics














Tuesday, September 25, 2007

Lip Repair


On September 19th, Bryson had surgery to repair his cleft lip. At the same time, the Opthalmologist did ultrasound on his eyes and the jury is still out as far as the findings from that test. He also had a hearing test while under sedation and we will learn more on that as well. The repair to the lip was a success and he really looks different and I think that there will be more positives to come as he continues to heal. Unfortunately, he bumped the lip area on a part of his "Jumperoo" chair and it started bleeding. They used surgical glue to help the skin from the two sections of the outer upper lip to heal without scaring that often comes when using sutures. They did however have to use sutures on the inner part of the lip inside the mouth. It also appears that they realigned the septum of the nose so that it would be more symetrical. Like I said, he has a different profile and a different smile (even though it hurts a little to smile) he keeps trying. He has been a brave little boy and I admire his spunk and spirit.

He has changed alot since I was here in San Antonio back in June for his first birthday. He has changed a lot since then. He is so much more active (wiggly) and on the verge of crawling any day now. He is very strong willed and is making strides everyday. We are so very proud of him.

Friday, September 14, 2007

New Pictures from Auntie Manda

The Family went to Guinness World Records Museum.

Pictured right to left: Conrad, Amanda, David, Travis, Dana & Bryson in stroller

Dana & Bryson make an "appearance" on the Oprah Show.

Two amazing works of art.


The Nault Family

Conrad and his two nephews Bryson & David

Amanda and David







Here's my favorite: Kissin' Cousins

Tuesday, September 04, 2007

Surgery Scheduled

Bryson is scheduled for his lip repair on September 19th. At the same time, there will be an ultrasound performed on his eyes to see if cataract removal will help him to see. I'm really nervous about the surgery, because he'll look different, and I'll miss seeing him as he is, the way God made him. But, you do have to look at the many benefits to having the lip repaired and that hopefully, he'll be able to eat better and breathe better through his nose. He may make different sounds than what he is doing now. He's recently picked up a new sound. It kind of sounds like a cricket chirping. We have no idea how he makes this sound, but it's funny to hear it.

I will be flying to San Antonio to be with him and Mommy & Daddy for moral support and to catch glimpse of his new face.

Please keep us in your thoughts and prayers as surgery is always kind of nerve wracking.